Tali Update

A quick update on Tali:

In baby jail, The first day she love the bed and would walk around holding on to the bars. The other days not so much.

They are letting us come home from the hospital but with more testing, monitoring and doctors visits ahead. They think they are getting closer to a diagnosis (hurray). Tomorrow we will be seeing the Pediatric Cardiologist and doing a sedated echo. They are checking to make sure that her heart and arteries are okay since they suspect that she had atypical Kawasaki's Disease which can cause damage to both. Then after that we will be following up with the Infectious Disease team and they will be reporting on the extensive blood work and tests they preformed yesterday.

We are so grateful to all of the doctors and nurses that have been caring for her. They are all wonderful providers and have been working hard to find out what has been causing these fevers. She is an amazing, resilient little girl. She didn't get a lot of sleep (who does in the hospital) but was still happy and smiling for everyone. We had many nurses just coming in to meet Tali because they heard what a happy baby she is. She also had over 6 doctors and specialists coming in and out and also all there at the same time. She would visit with all of them. The Infectious Disease team couldn't believe that she is so happy with all of this going on. The ID (Infectious Disease) team have been asking us a bunch of odd questions (like to do we have any pet rats) in hopes of helping them find the cause! Really, they think I would have a pet rat!

Trying to get out. Normally she doesn't get her binky all day but at the hospital she sure did.

Trying to eat her IV. They said that most babies cry with the IV cause of the odd feeling of it entering the body. She would stare and then try and eat it. No tears for her (except when they put the IV in).

Pulling at straws (literally) with things for her to play with. She wasn't allowed into the playroom because they don't know what is wrong and so they don't know if it is infectious. 

P.S. Nannie insisted that she have a clip in her hair to keep it out of her eyes....her daddy took care of that one.

Thank you for the prayers we know that they are working and that they are helping to guide the doctors in finding out what is wrong.

Random Life

A little at what is happening around our house:

Max helping make cake (our finished product, with most of the nuts right in the middle..placed by Max).

Max having a bath and Tali wishing she was too

Naughty Tali getting into the dishes. They were clean.

Max and Mommy date to Krispy Kreme. He got a special snow man doughnut.

Tali reading her book.

Halloween

Way late but still fun, Max went to Nana Deb's 1st grade party. They had a lot of fun activites at the centers. He especially loved making a skeleton with q-tips. He was even in the Halloween parade.

After we went trick-or-treating. Max thought that you were supposed to knock on the doors and give them a treat and so every time they gave him a treat he was SO excited.

Attempting Halloween pictures